4/29/13 - The mother of a young Fowlerville-area girl diagnosed with a rare genetic disorder is urging community support at a walk next month designed to raise both funds and awareness. The Angelman Syndrome Walk-A-Thon is a 2.2 mile walk that will be followed by a picnic on Saturday, May 18th at Linden County Park. Angelman Syndrome is a complex genetic disorder that primarily affects the nervous system, resulting in delayed development, intellectual disabilities, severe speech impairment, seizures and problems with movement and balance. It is rare in that one in every 15,000 children are diagnosed and Tyfanie Faron received the news when her daughter Avery was 2-years-old. She says they noticed Avery had a speech delay, which prompted them to get some genetic testing done and finally a diagnosis. After Avery was diagnosed, Faron says they connected with the Angelman Foundation and were able to get in touch with other families and form a support network, which is why she is urging community support for the walk. All of the funds raised will go to the Foundation, which seeks to advance awareness, understanding and treatment with the ultimate goal of finding a cure. You can find details about the walk through the link below.
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